Welcome to ICORD!

International Conference on Rare Diseases and Orphan Drugs

ICORD is an International Society for all individuals actively involved in rare diseases and/or orphan drugs, including health care, research, academic, industry, patient organisations, regulatory authorities, health authorities, and public policy professionals.

The mission of ICORD is to improve the welfare of patients with rare diseases and their families world-wide through better knowledge, research, care, information, education and awareness. Read more…

Ongoing and recent activities

  • ICORD is thankful to its partners and co-organizers, Chinese Organisation for Rare Diseases (CORD), Peking Union Medical College Hospital (PUMCH) partner and Rare Diseases International (RDI) for arranging the successful 12th Annual ICORD Meeting in Beijing, 7-10 September.

Future annual ICORD meetings

ICORD members and non-members are welcome to send their expression of interest to host future Annual ICORD Meetings to the secretariat, icord.karolinska@sll.seRead more…


Of note

A commercial organisation, OMICS International, arranges a meeting with a name identical to ICORD, “International conference on Rare Diseases and Orphan Drugs”. Please note that ICORD is not involved in the organisation of this event.